The Graceful Art of Falling
By L. White
Facts About FSH MD
~In FSH MD, the usual location of muscle weaknesses at onset is the origin of the name: face (facio), shoulder girdle (scapulo) and upper arms (humeral)(FSH Society, 2010).
~While the exact incidence of FSH is unknown, FSHD Type 1 incidence (the most common form) is estimated to be 1 in 7,500 people throughout the world (FSH Society, 2010).
~Although the FSHD gene is present at birth, weaknesses are generally not noticeable until the second decade. Sometimes muscle weaknesses are slight throughout adulthood. However, it is important to realize that the onset of FSHD is variable. (FSH Society, 2010).
~By the age of 20, muscle weakness can be found approximately 95% of the time in affected individuals (FSH Society, 2010).
~There is certainty that some skeletal muscles will weaken and waste throughout life and that this can, and often does, cause limitations on personal and occupational activities. FSHD appears not to diminish the intellect. The heart and internal (smooth) muscles seem spared and, with rare exceptions, those with FSHD have a normal life span. (FSH Society, 2010).
~The rapidity and extent of muscle loss differ considerably among FSHD patients — even among members of the same family. Some report few difficulties throughout life, while others need a wheelchair as walking becomes too difficult or impossible (FSH Society, 2010).
~The Albuquerque MDA provides services for over 40 different muscle disorders.
~As of June, 2011 15% of people worldwide had a physical or mental disability according to a study done by the World Health Organization and the World Bank.